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Patient Portals and the Management of Pediatric Chronic Diseases – A Systematic Literature Review

Clemens Scott Kruse, Nicole Mari Ozoa, James Gregory Smith

Abstract


Background: The dynamic healthcare reform initiatives have prompted unprecedented focus on coordination of care. The evolution of technology in the last decade has demanded increased coordination of care and patient involvement. Through patient portals, patients are able to view their personal health information and communicate with their providers through a secure web-based interface.  However, there is limited research on the use of pediatric patient portals, specifically in the management of pediatric chronic diseases.

 

Objective: To discuss the access, impact, and utilization of patient portals in the management of pediatric chronic diseases.

 

Methods: We conducted a systematic review of the literature about patient portals and electronic health records (EHR) for pediatric patients from January 2009 through October 2014 to identify peer-reviewed publications in bibliographic databases and websites.  Reviewers screened each publications for predetermined key themes including use, attitude and experiences, and impact of EHRs and pediatric patient portals. Eighty-five peer-reviewed publications were retrieved, and 19 of them met inclusion criteria (n=19).

 

Results: Themes of improved communication between patient and provider, patient access to healthcare information, and improved management of pediatric chronic disease were found, and barriers to the utilization of patient portals including lack of access to web-based interfaces due to low socioeconomic status and language barriers.

 

Conclusions: The potential for pediatric portals to augment the management of pediatric diseases in the near future is highly promising, though there are some issues in the barriers to utilization that still need to be addressed.

Keywords


Pediatric, electronic health records

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References


Adhikari, Payal D., et al. "Influence of electronic health records and in-office weight management support resources on childhood obesity care." Clinical pediatrics 51.8 (2012): 788-792.

Boyle, Coleen A., et al. "Trends in the prevalence of developmental disabilities in US children, 1997–2008." Pediatrics (2011): peds-2010.

Byczkowski, Terri L., Jennifer K. Munafo, and Maria T. Britto. "Variation in use of Internet-based patient portals by parents of children with chronic disease." Archives of pediatrics & adolescent medicine 165.5 (2011): 405-411.

Casciato, Allison, et al. "Are pediatric quality care measures too stringent?." The Journal of the American Board of Family Medicine 25.5 (2012): 686-693.

Emont, Seth. "Measuring the impact of patient portals." California Healthcare Foundation (2011): 1-20.

Fiks, Alexander G., et al. "Electronic medical record use in pediatric primary care." Journal of the American Medical Informatics Association (2010): jamia-2010.

Fontaine, Patricia, et al. "Systematic review of health information exchange in primary care practices." The Journal of the American Board of Family Medicine 23.5 (2010): 655-670.

Hacker, Karen, et al. "Impact of electronic health record transition on behavioral health screening in a large pediatric practice." Psychiatric Services 63.3 (2012): 256-261.

Hanberger, Lena, Johnny Ludvigsson, and Sam Nordfeldt. "Use of a web 2.0 portal to improve education and communication in young patients with families: randomized controlled trial." Journal of medical Internet research 15.8 (2013).

Jensen, Roxanne E., et al. "Implementing electronic health record-based quality measures for developmental screening." Pediatrics 124.4 (2009): e648-e654.

Ketterer, Tara, et al. "Correlates of patient portal enrollment and activation in primary care pediatrics." Academic pediatrics 13.3 (2013): 264-271.

Kruse, Clemens Scott, Katy Bolton, and Greg Freriks. "The effect of patient portals on quality outcomes and its implications to meaningful use: a systematic review." Journal of medical Internet research 17.2 (2015): e44.

Leu, Michael G., et al. "Pediatricians’ use of health information technology: a national survey." Pediatrics 130.6 (2012): e1441-e1446.

Nordfeldt, Sam, Lena Hanberger, and Carina Berterö. "Patient and parent views on a Web 2.0 Diabetes Portal—the management tool, the generator, and the gatekeeper: qualitative study." Journal of medical Internet research 12.2 (2010).

Nordqvist, Cecilia, et al. "Health professionals’ attitudes towards using a Web 2.0 portal for child and adolescent diabetes care: qualitative study." Journal of medical Internet research 11.2 (2009).

Or, Calvin KL, and Da Tao. "Does the use of consumer health information technology improve outcomes in the patient self-management of diabetes? A meta-analysis and narrative review of randomized controlled trials." International journal of medical informatics 83.5 (2014): 320-329.

Osborn, Chandra Y., et al. "Patient web portals to improve diabetes outcomes: a systematic review." Current diabetes reports 10.6 (2010): 422-435.

Pinsker, Jordan E., et al. "A pilot project for improving paediatric diabetes outcomes using a website: the Pediatric Diabetes Education Portal." Journal of telemedicine and telecare 17.5 (2011): 226-230.

Ralston, James D., et al. "Patient use of secure electronic messaging within a shared medical record: a cross-sectional study." Journal of general internal medicine 24.3 (2009): 349-355.

Saviñon, Carla, et al. "Childhood obesity: can electronic medical records customized with clinical practice guidelines improve screening and diagnosis?." Journal of the American Academy of Nurse Practitioners 24.8 (2012): 463-471.

Sherek, P. D., and E. Gray. "Case study: managing pediatric health information in a patient portal." Journal of AHIMA/American Health Information Management Association 85.4 (2014): 46.

The Office of the National Coordinator for Health Information Technology staff. What is a patient portal? The Office of the National Coordinator of Health Information Technology. http://www.healthit.gov/providers-professionals/faqs/what-patient-portal. Published March 20, 2014. Accessed November 30, 2014.

Urowitz, Sara, et al. "Improving Diabetes Management With a Patient Portal: Qualitative Study of a Diabetes Self-Management Portal." Journal of medical Internet research 14.6 (2012).

Wager, Karen A., Frances Wickham Lee, and John P. Glaser. Health care information systems: a practical approach for health care management, 3rd ed. John Wiley & Sons, 2013.




DOI: http://dx.doi.org/10.18103/mra.v2i1.162

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